LETTER To ANTHEM on 8/21/12
ATTN: Member Grievance
Member
Appeals Department- 2nd Level Independent Review
Date Of Service: September 12, 2011
Procedure: Bilateral Prophylactic Mastectomy with DIEP Flap
To Whom It May Concern,
I am a 43 year old single mother to a 3 year old boy. I found out I was BRCA2 positive in November
2010 when my son was just 17 months old.
There is a strong family history of breast cancer on both sides of my
family but my BRCA gene mutation comes from my paternal side.
At 40 years old I became the sole parent to my newborn son. Although my doctors were aware of my family cancer history it was after my son was born, my new OBGYN suggested I take the simple blood test for the BRCA gene. I didn’t even know there was such a gene let alone a test. I was still in a state of bliss being a new mom and I didn’t really want to mess with that, so I waited quite awhile before I agreed to take the test. I NEVER thought how my life and my son’s life would be tremendously impacted by the results. I was POSITIVE for the breast and ovarian cancer gene.
All of a sudden I was sitting with a genetic counselor and she’s handing me information for a mastectomy and hysterectomy and all I wanted to do was scream, “I don’t have cancer.” Not yet anyway. I met with my internist in Los Angeles, although I live an hour south in Orange County, and he immediately had me meet with his colleagues and specialists. I met with Dr. Jay Orringer M.D., F.A.C.S. and Dr. Jay Granzow M.D., M.P.H., both highly skilled Board Certified Plastic Surgeons and highly trained in advanced methods of breast reconstruction. I had a crash course in prophylactic mastectomy and immediate reconstruction using implants or the much more involved DIEP flap.
Going into this I knew I would need a “team” of doctors. As much as I appreciated the expedience with which I was able to meet with the LA doctors, I live an hour away and knew I had to explore other options. I met with 13 or so doctors total. This included an oncologist, a cardiologist, gastroenterologist, and several other surgeons and plastic surgeons. Not only was it important for me to like all the doctors involved, I had to make sure they too could work with each other. I met with doctors from Hoag Hospital as well as St. Joseph’s Hospital, both in Orange County. Over and over again I was told I was a great candidate for the DIEP flap but no surgeons I met with were skilled in the specialized DIEP procedure (19364-22-62). As you know it is a very delicate and specialized surgery that requires microsurgical transplant of tissue and blood vessels. After much thought and consideration to my personal situation, I chose to have a bilateral prophylactic mastectomy with DIEP flap with the team of LA doctors that I had consulted with. I believe I absolutely did my homework and tirelessly consulted with many doctors, thus choosing my LA Team. This does not mean I was emotionally ready though. My surgery was originally scheduled for February 2011 and I postponed it to September 12, 2011.
As a woman, making the decision to remove otherwise healthy
tissue is very daunting. I was
absolutely going ahead with this procedure, as it is my right and choice
to do so for preventative reasons.
If I were to get breast cancer and perhaps die who would raise my
son? There is no father side of the
family for him to go to. I made the best
choice for me and my son. I wanted my son
to be young enough that he would have no memory of this nightmare I was
living. I also wanted to choose the best
procedure that would NOT have me in and out of operating rooms over the course
of my life, like repeatedly fixing implants due to leaking or encapsulation, or other issues that may
arise. Choosing mastectomy with DIEP
flap was a very emotional decision to for me.
I would have to be in the hands of the most skilled surgeons who perform
this procedure thousands of times.
My surgery on September 12, 2011 was roughly 18 and ½ hours.
Dr. Robert Cole was my surgeon who performed the mastectomy (about 3-4
hours) and the rest of that day and night Dr. Orringer AND
Dr. Granzow worked simultaneously on me as co-surgeons. There was no assistant. It was an emotionally draining day for my
family and exhausting for these two highly qualified surgeons. This is how the surgery was PRE-AUTHORIZED and I expect it to be paid
accordingly. I understand that I went
out of network and my contract with Anthem clearly states the percentages paid
when doing so. Each doctor was paid out
of pocket $34,000. Each doctor billed
$32,400. I have received back $11,329.79
total for Dr. Orringer’s services. I
expect the same for Dr. Granzow. Thus
far, I have received just over $2000 for Dr. Granzow and that is mostly from
doctor visits and other procedures he required from me. This is my grievance as I am almost at my one
year anniversary and there has been inadequate funds refunded. In all actuality it is my opinion that this
complex surgery should have been reimbursed at a much higher rate, even 100%
reimbursement should be allowed since there was not an in-network doctor(s) in
my area. St. John’s and my
anesthesiologist WERE in network facility.
Does Anthem take in consideration that it was necessary for me to go out
of network for my surgeons and yet I DID utilize my
network as much as possible? Much
more should be paid as the DIEP flap (19364-22-62) requires TWO microsurgical
co-surgeons. Because I could not find
this in my home town, it was necessary to drive one hour to LA where Dr.
Orringer AND Dr. Granzow ended up being my surgeons. Going out of network is really not the
issue. For me, there was no other
option. Might I add, when one is BRCA positive it does not go away
with a mastectomy or hysterectomy, which I have yet to do. I have to be constantly monitored for the
rest of my life as I am susceptible to many other cancers. For this, I have continued with other
surgeries and procedures. I have continued
with ultrasounds and CA-125 every 6 months, yearly colonoscopies and yearly
esophageal ultrasound to monitor my pancreas. This takes an
emotional toll on me and my family, especially when I cannot fully be available
to my son, as I am his primary and sole caregiver. All of these medical issues and
procedures are draining. I have
done my “due diligence” in every aspect of this journey. I have done everything that has been asked of
me by each and every doctor, as well as you, my insurance company. I pay my premiums, my bills are paid in full
and I get pre-authorization. One of my
doctors told me that I am her most proactive patient. So why am I being penalized? It’s either do this or get cancer. Which one do you want to pay for? What would you do?
I demand an Independent Board Certified Plastic and Reconstructive micro-surgeon review this appeal. It is my opinion that a qualified person(s) are the only one’s that will have a greater understanding of the events on September 12, 2011. Please review my records and see for yourself which doctors I met with, what procedures and surgeries I have had done to date, what has been reimbursed and what is still pending. You will also find letters from my surgeons written on my behalf. I look forward to hearing back from you.
Sincerely,
